This mama is in need of support and ideas. I have sent her the link to this post so she can anonymously become informed. PLEASE take a moment to leave a comment for this mama.
"I watched the video you had posted on your wall about Autism, by Dr. David Davis, and a few others posted by the same man who posted that video on Youtube. I have talked with Jennifer about some of my concerns; she did suggest I add you as a friend because of your knowledge. I feel like no pediatrician has ever listened to my concerns with my children and I am constantly being blown off and have been accused of being depressed.
I would like to give you a summary of my children’s health. I have two chronically ill children that have developmental delays and emotional disorders. I would like to hear what you think I should do. E is 6 years old and he first showed signs of asthma at 5 months and has been on daily medication since then, but was first diagnosed with asthma, eczema, and allergies. He spent years in and out of doctors’ offices and is on adult doses of an asthma medication that is not approved for children under 12 (Symbicort). This comes after the failure of all other asthma medications. He takes 3 different allergy medications daily with Albuterol.
He has been diagnosed with ADHD, ODD and has a questionable “spectrum disorder.” His behavior has improved over the years, with positive reinforcement, but he still has issues on a daily basis. E has received all of his vaccinations, has ear tubes, and has had surgery to remove his tonsils and adenoids all on doctor’s recommendations. E never learned to latch on to breastfeed. E’s IgE levels are above 1200. I can explain what that is if you do not know. He now suffers with headaches that have not been diagnosed. I even had a former pediatrician say they were the cause of my “undiagnosed depression”.
My younger son O is 3 years old. He was premature, (both of the boys were). Owen’s medical history is a bit more extensive; I will try to give an overview with detail. Owen first showed signs of sickness as a newborn. He had a cold at 2 weeks, at 9 months was diagnosed with RSV, at 10 months an undiagnosed “viral infection” in his lungs almost killed him, they then diagnosed him with allergies and asthma. He started having chronic diarrhea around 6 months of age, not to be funny here but it was the most awful smelling stuff imaginable.
This is the age where his health deteriorated; the next two years of our lives were utter hell. He had chronic infections, pharyngitis, strep throat, ear infections, thrush, conjunctivitis, pneumonia, bronchitis, chronic diarrhea, MRSA, eczema, yeast infections and he was failure to thrive at 2 years old, with no weight or height growth in over a year. After his tonsils were removed he started growing again. He has had 2 sets of ear tubes and is in the 10% of children who still get ear infections (both of my children do). His diarrhea was diagnosed as Toddler’s diarrhea, which is IBS in children under 4. He had surgery at 2 to determine the causation of the diarrhea; it was found his pancreas creates low levels of amalayse, which is the enzyme that breaks down carbohydrates.
At 15 months his pediatrician stopped all vaccinations, because he was “high risk for autism.” He entered first steps for developmental delays and worked with a PT, OT and Speech therapist. His final diagnoses were medical issues and Sensory disorder and developmental coordination delay, which will probably end him up on the spectrum as well. He still today sees an OT for these delays; he is better but not 100 percent.
His last doctor had me investigated for Munchausen’s by proxy after I refused his shots and asked to have him tested for food allergies. He still has chronic sinus infections and it is passed off as allergies. Even though he has tested negative for all environmental allergies, they still refuse to test him for food allergies. I was forced into giving O a flu vaccination in January under threats of child neglect. After almost one year of me fighting to get him off of his daily asthma medication, because he had only had one episode in that time, the doctors finally complied. His diarrhea has improved, and I monitor his diet, but am told by his GI doctors to only restrict high fructose corn syrup and that if I do more than that it may cause issues in the family.
O had a few situations with shots where he had trouble breathing and vomited and had a fever above 102. He was rushed to the ER both times, with doctors saying it was just a coincidence. After I brought those up to the Allergist and Pediatrician, that’s when they started saying there was no documentation and started their "investigation" even though there was ER reports from both occurrences. In January after receiving his flu vaccination he had a fever of 101 for 13 hours. I was instructed to from now on give him Tylenol. His Allergist is saying that I have to get his 4 year old vaccinations, and that he will do what is called a differential testing to make sure he has no allergic reactions.
I am at a loss at what to do here as a parent. We are on state funded insurance; I have very little money and am a single parent. In Indiana it is mandatory for us to get our children vaccinated or they can kick them off of their insurance, unless a doctor will sign off on it. I have no idea where to go from here, I have switched pediatricians and am wary of giving the new doctor my children’s medical reports because accusations of psychosocial issues in the family, especially with the Münchhausen accusations. I should say they never proceeded past talking amongst themselves with the accusation, but it is documented in O’s medical files. If you have some knowledge or thoughts on my situation I would appreciate feedback."